CPAN Quarterly Information Bulletin June 2025: © inventory.adobe.com.
A Notice from the Director of Affected person Advocacy & Training
The advocacy monitor made a much-anticipated return to COA’s annual Convention in April. Most cancers survivors, caregivers, and CPAN chapter leaders representing 17 neighborhood oncology practices nationwide gathered to study COA and COA’s advocacy points and be taught from one another.
The 2-day advocacy monitor started with Get to Know Your Fellow Advocates, designed to encourage individuals and remind them that everybody could be a highly effective advocate. By means of sharing private tales, we had been all reminded that most cancers doesn’t outline an individual. It was a really particular session!
The advocacy monitor periods—attended by advocates and normal attendees over each days—included the significance of preserving neighborhood oncology and why it issues to individuals residing with most cancers earlier than shifting on to understanding coverage and the basics of advocacy. A session on the facility of storytelling taught us how one’s story may drive change, and a session on the best way to successfully share your story with the media tied all the pieces collectively.
Sincerely,
Rose Gerber, MS
COA Director of Affected person Advocacy & Training
Upcoming Advocacy Alternatives
Strengthen Neighborhood Oncology with Fellow Advocates and Policymakers
July 9: Digital Capitol Hill Day Observe Up Advocacy Chat: Sit in My Chair*
September 10: Digital Advocacy Chat: Nationwide Starvation Motion Month/Ties into Most cancers Well being Disparities*
*Occasion dates are topic to vary
Contact your native CPAN Chapter Advocacy Chief or Rose Gerber to learn to get entangled.
Well being Coverage 101: COA President Dr. Debra Patt Testifies Earlier than the U.S. Home of Representatives
Neighborhood oncology’s modern most cancers remedies are main to higher outcomes, however some insurance policies are limiting sufferers’ entry to those remedies. COA President and Government Vice President of Texas Oncology Debra Patt, MD, PhD, MBA, testified earlier than the U.S. Home of Representatives Committee on Methods and Means on how policymakers could make modern therapies accessible.
“Each day, as oncologists, we see sufferers who merely can’t afford their remedies. Our job as physicians contains advocating for our sufferers and doing no matter is feasible to make their remedies as inexpensive as potential,” stated Dr. Patt. “Our sufferers who’re fighting the affordability of most cancers therapy depend upon us.”
Watch Rick’s Advocacy in Motion Story [45 Seconds]
“Getting my remedy on time and coping with my insurance coverage was truly tougher than coping with my most cancers,” stated Rick, a most cancers survivor and CPAN advocate. He speaks up for unbiased neighborhood oncology so different individuals residing with most cancers can give attention to their therapy. Watch the newest Advocacy in Motion.
How do you help individuals residing with most cancers? Share your story.
Recap Current CPAN Advocacy Chats
Partaking conversations with most cancers advocates, survivors, and professionals from across the nation on neighborhood oncology’s most urgent subjects.
June: Most cancers is a life-changing occasion. When households, pals, and suppliers perceive a person’s journey, they will higher help individuals residing with most cancers and survivors. Shelley Fuld Nasso, MMP, CEO of the Nationwide Coalition for Most cancers Survivorship, joined Rose Gerber, MS, to debate the most cancers survivor expertise.
Could: Oncology nurses are integral to the most cancers care crew supporting individuals residing with most cancers. Throughout Nationwide Oncology Nursing month, Shannon Besselman, RN, BSN, scientific supervisor at Northwest Medical Specialties, mentioned the position of oncology nurses with Rose Gerber, MS.
April: State-level pharmacy profit supervisor (PBM) reform has gained momentum in 2025 – most notably in Arkansas, the place a brand new regulation would enhance affected person entry to inexpensive remedies. COA Director of State Regulation and Coverage James Lee joined Rose Gerber, MS, to debate PBM reform and different state coverage traits shaping affected person care in 2025.
Stream current Advocacy Chats on @OncologyCOA’s YouTube channel.
Most cancers Information You Can Use
What Neighborhood Oncologists Ought to Know About “Bellwether” for PBM Reform – Oncology Information Central, 05/06
Though extra lawmakers in Congress are studying how PBMs have an effect on affected person care, legislative success is going on on the state degree. Coverage specialists mentioned three legal guidelines in Arkansas that would information future PBM reform efforts in the course of the COA 2025 Neighborhood Oncology Convention.
Ladies Who Survive Most cancers Are Extra Doubtless Than Males to Have Fatigue and Melancholy – NBC Information, 04/29
Ladies who survive most cancers usually tend to expertise cancer-related fatigue and despair than males, in line with analysis introduced on the American Affiliation for Most cancers Analysis’s annual assembly. The research discovered that, in contrast with male survivors, feminine most cancers survivors had been 69% extra prone to report cancer-related fatigue and 58% extra prone to report despair.
Superior Cancers Returned To Pre-Pandemic Ranges, In accordance with a Reassuring Report – Related Press, 04/22
Many individuals residing in America had been pressured to postpone most cancers screenings for a number of months in 2020 as COVID-19 overwhelmed medical doctors and hospitals. However delays in screening haven’t impacted most cancers loss of life charges and late diagnoses have stayed constant, in line with a report revealed within the American Most cancers Society’s Most cancers journal.
Sources for Chapters
Guarantee policymakers perceive how unbiased neighborhood oncology delivers native, high-quality most cancers care. Invite policymakers with COA’s Sit In My Chair and champion most cancers reform.
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