THE mother and father of a toddler thought his vomiting and lack of urge for food have been attributable to a ‘abdomen bug’.
To their horror, the tot was given simply months to stay after an incurable tumour the dimensions of a tennis ball was present in his mind.
Lucas Garcia-Batalla was recognized with a grade 3 anaplastic ependymoma – a quick rising malignant tumour – simply 10 days after his first birthday.
Lucas had been affected by flu like signs, so his prognosis got here as a “shock” to his mother and father David Garcia Jurado, 42, and Laura Batalla, 38.
The toddler underwent three main mind surgical procedures, 13 months of chemotherapy and two months of proton beam remedy.
Sadly, the tumour stored coming again and David suspects his little boy might need lower than a 12 months to stay.
David, a senior mission supervisor, from Stonehaven, Aberdeenshire, mentioned: “Simply earlier than his first birthday Lucas was sick.
“He did not have a lot urge for food however we thought it was a abdomen bug.
“He did not cease vomiting, he was torpid, and all the things occurred so rapidly – it was not a sluggish development.
“Just a few days later, a CT scan revealed a large tumour on the again of his head. It was 1.6in by 1.6in (4cm by 4cm) – it was like a tennis ball.
“That was a really darkish second for me. I nonetheless have the image in my thoughts of my spouse holding Lucas and them telling us he had a mind tumour.”
Lucas, now six, celebrated his first birthday on April 1, 2019.
CRUSHED HOPES
After a CT scan revealed Lucas had a grade 3 anaplastic ependymoma, he was transferred to The Royal Hospital for Youngsters and Younger Folks in Edinburgh, the place he had a ten hour operation to take away the tumour.
The operation was profitable.
David mentioned: “His first surgical procedure was simply two days after his prognosis.
“They managed to take away all the things, it was a profitable surgical procedure.
“Lucas then had chemotherapy for 13 months, after that an MRI was OK – he was clear.”
However three months after he completed his chemotherapy, Lucas relapsed in September 2020.
He underwent one other surgical procedure and was transferred to the Christie Hospital, Manchester the place he had two months of proton beam remedy.
There aren’t any extra choices for him. What number of occasions are you able to open his head and have surgical procedure?
David Garcia Jurado
David mentioned: “We had hope for a 12 months after which in December 2021 he relapsed once more.
“He had palliative surgical procedure in March 2022 to take away the tumour, and once more, that was profitable.
“After that in January 2023, he had experimental Gamma Knife surgical procedure – a kind of radiotherapy therapy.
“It is the fist time one thing like that has been achieved to a four-year-old to cease or delay the expansion for a while.”
Sadly, in June 2023, an MRI scan revealed the tumour is continuous to develop.
‘TIME BOMB’
David mentioned there aren’t any extra therapy choices left for Lucas and they’re aiming to present him the most effective life attainable.
“There aren’t any extra choices for him, what number of occasions are you able to open his head and have a surgical procedure?” David mentioned.
“In all of his journey, crucial factor is to maintain him alive however the unwanted side effects are actually tough.
“Lucas is blind in the best eye and deaf within the left ear.
“It’s a miracle that he has been in a position to go to high school. He has an important sense of humour, it’s unbelievable.
“You would not imagine what he has gone via.”
David mentioned that the tumour is sort of a “time bomb” and Lucas might need only a 12 months left to stay.
He mentioned you will need to “benefit from the second” and provides Lucas a “regular life”.
Pink flags to be careful for in your baby
WHEN your baby turns into unwell, it may be scary, particularly when they’re very younger and can’t inform you what they’re feeling.
Most sicknesses in youngsters aren’t often severe and your tot will get better rapidly with some care at house.
Typically, it may be onerous to pinpoint in case your baby is critically in poor health – particularly in infants – as there won’t be any apparent clues.
Belief your instincts. your baby higher than anybody else.
In case you assume they want greater than self-care at house, you possibly can contact 111, your GP or A&E.
These providers can assess your baby and supply recommendation on the care your baby wants.
Listed below are crimson flag indicators to be careful for which imply it is best to name 999 or go to A&E:
- Pale, mottled or has abnormally chilly palms or ft
- Your baby has collapsed or is unresponsive, unconscious or troublesome to wake, torpid or confused
- No apparent pulse or heartbeat
- They’re struggling a extreme allergic response
- Blue across the lips
- They appear very agitated and stressed and you can not settle them with cuddles, toys, TV or meals
- They’re having a seizure or match
- They continue to be drowsy (sleepy) or very agitated even when they don’t have a fever
- Not respiration
- Sucking out and in between ribs
- Utilizing their neck muscle tissues when respiration
- Extraordinarily quick respiration
- Noisy respiration similar to grunting or stridor
- Too breathless to speak or feed
- Has lengthy pauses of their respiration (greater than 10 seconds)
- Bleeding from an damage that doesn’t cease after 10 minutes of strain
David added: “It is vitally obscure, in some unspecified time in the future you study to stay with uncertainty.
“It’s like having a ticking time bomb, however we would like him to have essentially the most regular life attainable – it’s all about him.”
Catherine Fraher, director of providers and digital well being at The Mind Tumour Charity, mentioned: “We’re actually grateful to everybody who shares their – usually heartbreaking – story to lift consciousness of mind tumours.
“We all know that each household offers with a mind tumour prognosis and its aftermath in their very own distinctive method.
“That is why The Mind Tumour Charity gives help to anybody who wants it. It is so essential for them to know that they aren’t alone.”
