Mayra Andujar-Delgado is grateful to her doctor, Dr. Faseeh Khaja, for the way he saved each her and her caregiver, which was her husband, knowledgeable all through her decade lengthy most cancers journey with myelofibrosis.
Mayra recounted her expertise with myelofibrosis, which was marked by frequent ICU admissions. She emphasised the crucial position of her husband, who acted as a caregiver and the way Dr. Khaja knowledgeable them about medical procedures and potential remedies for Mayra. Mayra acknowledged the lack of awareness about myeloproliferative neoplasms (MPNs) at first, which made the journey troublesome for each her as a affected person and for Dr. Khaja. She highlighted the significance of proactive affected person engagement and the profitable collaboration between her and her husband with Dr. Khaja, resulting in optimistic outcomes.
Khaja was honored on the
Transcript
My husband was my caregiver each step of the best way, and he was each time that I went to the ICU, and I used to be admitted to the ICU typically. [Dr. Khaja] made positive he knowledgeable, for example, my husband, on what was taking place with me, and what the follow-up was. What had been the procedures to do subsequent, and what had been the attainable remedies to do afterwards? We now have to return 10 years in the past, after I was identified, after I was first beginning this well being disaster journey. We did not know as a lot as we all know right now about MPNs, so it was a tough, tough journey, not just for me as a affected person, however for him as a health care provider, making an attempt to determine what was mistaken, what was the end result, and what’s [the step-by-step plan].
We me being proactive as a affected person that is essential, and aspect by aspect, the 2 of us handle to work collectively and at last obtained good outcomes.
Transcript has been edited for readability and conciseness.
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