2025 Quarter 3 – COA Affected person Advocacy Community Information Bulletin


A Word from the Director of Affected person Advocacy & Training

CPAN begins the fourth quarter with a continued give attention to its core mission: educating advocates on the worth of impartial group most cancers care practices.

CPAN supplies schooling and engagement alternatives year-round by in-person and digital advocacy occasions. This 12 months’s CPAN Advocacy Chats (Instructional Conversations on Well being Care and Coverage) have offered perception into COA’s federal and state coverage initiatives, together with PBMs, prior authorization, most cancers drug shortages, step remedy, biomarker testing, and well being fairness. Affected person-focused subjects have included most cancers prevention, vitamin, and survivorship.

Moreover, our Advocacy Chats offered insights from the group oncology workforce and COA member practices, which highlighted the necessary position of oncology nurses and pharmacists. Our subsequent advocacy dialog will give attention to what advocates must find out about pharmacy profit managers, from the angle of pharmacists.

CPAN will quickly launch a brand new chapter in Alabama. Throughout this stay practice-based advocacy occasion, contributors will study COA’s key coverage initiatives and the assorted advocacy alternatives with CPAN.

Due to our dedicated CPAN advocates, now we have elevated consideration on nationwide and native well being care points affecting sufferers

The very best advocates are knowledgeable advocates. Be taught extra at COAAdvocacy.org, and watch our movies on YouTube.

Sincerely,
Rose Gerber, MS
COA Director of Affected person Advocacy & Training

Upcoming Advocacy Alternatives

Connecting Neighborhood Oncology Advocates with Policymakers

  • October 8: Digital Advocacy Chat: Most cancers Care Hijacked: How PBMs Are Blocking Sufferers’ Entry to Remedy
  • October 28: CPAN Chapter Launch: Clearview Most cancers Institute (Huntsville, Ala.)
  • November 12: Digital Advocacy Chat: Nationwide Household Caregivers Month
  • December 10: Digital Advocacy Chat: CPAN 12 months in Evaluation

*All occasion dates are topic to vary

Contact your native CPAN chapter advocacy chief or Rose Gerber to become involved.

Well being Coverage 101: Construct Your Most cancers Care Data Throughout Well being Literacy Month

From scientific care selections to monetary concerns, a most cancers prognosis and remedy could be overwhelming for sufferers and their family members. October is Well being Literacy Month—take a look at COA’s Frequent Phrases in Oncology to raised perceive the ins and outs to tell care selections and empower advocates.

The Worth of Unbiased Neighborhood Oncology: Virginia Most cancers Institute

Neighborhood oncology is the care folks need after they face most cancers as a result of it’s native, revolutionary, and high-quality. Medical doctors, nurses, and administrative employees take time to get to know every affected person and their wants.

“We deal with the entire affected person, not only a explicit illness. A breast most cancers affected person doesn’t solely have breast most cancers. There are such a lot of different points,” stated Dr. James L. Khatcheressian, oncologist at Virginia Most cancers Institute. “Neighborhood oncology practices are higher tailored to assist the entire affected person somewhat than only one particular oncologic problem.” He echoes the sentiment on this Worth of Unbiased Neighborhood Oncology video.

Recap: Latest CPAN Advocacy Chats

Participating conversations with most cancers advocates, survivors, and professionals from across the nation on group oncology’s most urgent subjects.

September: Most cancers medicine is commonly the point of interest of remedy, however a balanced food regimen with nutritious meals performs an necessary position. COA’s Shiela Plasencia and Rose Gerber, MS, mentioned how impartial group oncology practices assist folks residing with most cancers obtain the nutrient-rich meals they want and tackle meals insecurity.

July: Latest federal coverage adjustments will reshape how folks residing with most cancers entry remedy, obtain care, and afford medicine. COA’s Nicolas Ferreyros and Rose Gerber, MS, mentioned the potential impacts of the One Large Lovely Invoice Act on most cancers care and what it may imply for group oncology. Plus, they shared how CPAN advocates can invite elected officers to native practices, to allow them to higher perceive the worth of native most cancers care to sufferers.

Stream latest Advocacy Chats on COA’s YouTube channel.

Most cancers Information You Can Use

Assist Is Rising For The Heavy Emotional Toll Most cancers Takes On Younger Males
NPR, 08/13

Dealing with most cancers isn’t straightforward for anybody, however males are likely to fare worse—emotionally and bodily—than ladies, in line with the American Most cancers Society. Proof reveals male survivors isolate extra, search much less assist and, alarmingly, die earlier. Two males, certainly one of whom began the assist group Man As much as Most cancers, shared their private experiences of most cancers prognosis at a younger age.

Extra Early Stage Colon Cancers Discovered In Individuals Aged 45-49 Due To Extra Screenings, Analysis Reveals

CBS Information, 08/05

As extra folks aged 45-49 are getting screened for colon most cancers, extra early-stage diagnoses are being made, in line with new analysis printed within the Journal of the American Medical Affiliation. Researchers word disparities in colorectal most cancers screening proceed, significantly based mostly on schooling ranges and insurance coverage standing.

Federal Decide Blocks Arkansas Legislation Barring Pharmacy Profit Managers From Proudly owning Pharmacies in State

Related Press, 07/28

A federal choose briefly blocked Arkansas’s first-in-the-nation legislation that prohibits pharmacy profit managers (PBMs) from proudly owning pharmacies within the state. Supporters of the legislation have stated it’s wanted, as a result of PBMs are forcing impartial pharmacies, particularly these in rural areas, to shut. The legislation was set to take impact on Jan. 1, 2026.

Sources for Chapters

COA and CancerCare teamed as much as develop Time to Display, a marketing campaign that highlights the significance of most cancers screening. Be taught extra about most cancers screening by accessing the Time to Display Advocacy Toolkit.

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